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Author: Subject: COPD

Peach Master





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  posted on 6/8/2009 at 10:17 PM
COPD as many of you know is an acronym for Chronic Obstructive Pulmonary Disorder or sometimes called disease. It is characterized by shortness of breath, panic attacks caused by shortness of breath, serious breathing issues, Chronic Bronchitis, or Pneumonia. It can, at the most serious level, be fatal because of these issues. It can be caused by smoking, Emphysema, or in my case, psoriatic arthritis invading the lungs causing inflammation of the airways. It can be controlled by long-lasting inhalers, short-term inhalers, steroids, vaporizers for smoking pot or by cooking the smoke. The big problem is that people who ignore it can die, some at a young age. I developed it in 2005 when I was 51 years old. My family was told that I would come off the respirator after a lung biopsy. They were told I would die. I have no idea why I didn't.

So, why am I posting this. Because I have a lot of friends on here. I want them to get help as soon as they begin feeling the symptoms I know it is a somewhat taboo issue on here, but the fact is a lot of people smoke pot and cigarettes. I see nothing wrong with a person's choices. Just be safe. I have a stressful life, one that makes me make stupid decisions involving cigarettes. So I guess I am a hypocrite. I still care about my fellow members. Be safe. Get tested.

[Edited on 6/9/2009 by Jhawker]

 

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Zen Peach



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  posted on 6/8/2009 at 11:05 PM
If you haven't heard of them, you need to check them out. National Jewish Center for Immunology and Respiratory Medicine in Denver, Colorado. I think they also have a center in Boulder as well.

http://www.nationaljewish.org/research/index.aspx

http://www.nationaljewish.org/research/areas/results/copd.aspx


Here's a journal article that explains one of the mechanisms that cause the airways to hyper-respond. They do all kinds of research out there related to allergy, immunology and asthma. It is THE place where not only do they know what is going on, they know what to do about it. Early on in the 1980's there were people with severe allergies that went into severe asthma, they filtered out some of the substances in the blood that are formed from the combination of the allergic response and then put the blood back in the people. People got well. Allergies are basically a defect (hyper-response) from one of your antibodies (immunoglobulins), IgE. (you have IgG, IgE, IgA, IgD, IgM) and a bunch of other stuff.

http://www.jimmunol.org/cgi/content/full/176/5/3157

Doctors everywhere do NOT all know the same things. Anyone with serious lung problems needs at least a consult with someone out there. Telling anyone or their family that you will probably die means the people you saw have no other answers. Do NOT accept their lack of knowledge. I could be on my soap box against medical america even longer than my soap box about the failures in US Foreign Policy! Please get out to National Jewish where they WILL help you.

 

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  posted on 6/8/2009 at 11:24 PM
My dad died of this and my mother is dying of it as we speak.....Both were long time smokers

 

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  posted on 6/9/2009 at 12:35 AM
quote:
"My dad died of this and my mother is dying of it as we speak.....Both were long time smokers"


My mother was a life long cigarette smoker...died much to young from lung cancer.

My Father was a life long cigarette smoker...died much to early from COPD.

Basically its like watching a loved one slowly suffocate to death.

I quit cold turkey years ago.

I am absolutely mystified that people smoke cigarettes. They are literally cancer sticks, emphazema sticks, COPD sticks, etc....and they take away huge sums of your money as they deliver their deadly 10 minute little buzz.

Lets see...

10 minute little buzz....

in exchange for....

Lung cancer, emphazema, COPD, bronchitis, dying much too early, lots and lots of...$$$$...literally going up in smoke, etc etc etc.

I just dont understand it.

 

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  posted on 6/9/2009 at 01:24 AM
quote:
My dad died of this and my mother is dying of it as we speak.....Both were long time smokers


So sad to hear this Ron....

 

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  posted on 6/9/2009 at 06:11 AM
My mother suffers from it..I don't understand what it takes to get people to stop. I get the addiction part, but knowing that at some point you're gonna pay a steep price...get some help.

 

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  posted on 6/9/2009 at 06:29 AM
We spent Memorial Day weekend watching cancer finish off my brother-in-law thanks to cigarette smoking. He was 50. His widow still smokes. Talk about stupid.
 

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  posted on 6/9/2009 at 06:41 AM
My Dad (74) has COPD and has been on full oxygen 24/7 for almost a year now after spending time in and out of the hospital multiple times. My Mom (64) is not too far behind right now.
I quit smoking about 2 1/2 yrs ago after Dad started his downward spiral.
My Dad was a National class runner in HS & college, broke the tape at Madison Square Garden and started what was to be a perennial HS power X-Country team in NYS Section 3. It pains me to see him the way he is now. I fear my Mom will be in the same boat within the next 6 to 10 years. It's not pretty.

 

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  posted on 6/9/2009 at 08:12 AM
Smoking tobbaco kills twice as many people each week in the US than died in the World Trade Center on 9-11.

 

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  posted on 6/9/2009 at 09:13 AM
I'll chime in. My mom is 67 and has pretty severe COPD. She quit smoking about 6 or 7 years ago when her breathing started becoming worse. But the damage was already done. She's on Oxygen pretty much 24/7, carries her little cannister when she has the opportunity to leave the house, which is not very often. Its put quite a strain on my dad and the family.

I don't preach too much, but smoking is really F-ing stupid. A total waste of money and precious health. Quit while you still can. Once disease sets in, it is too late.

 

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  posted on 6/9/2009 at 09:13 AM
My mom died of emphysema from smoking at 65 after spending the last 6 years of her life in hospitals, and on a respirator almost full time. She was effectively bedridden, became severely depressed and suffered from tremendous anxiety from never being able to catch her breath.

My dad is now 81. He suffers from several smoking related diseases including COPD, heart disease and high BP. His quality of life the last 15 years has been TERRIBLE. He lives only because 15 medications keep him alive. He's tethered to his oxygen tank and the side effects from his meds are as debilitating as the underlying conditions would be without them.

I've watched smoking destroy the golden years of both parents. While modern medicine extended their lives, the quality of them has been awful. My parents are strong willed, disciplined, hard working folks who tried to quit smoking many times and failed.

Smoking should be illegal, plain and simple, ILLEGAL. No substance that addictive, and that harmful, should be permitted.

 

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  posted on 6/9/2009 at 10:35 AM
One other thing, I'll echo JHawk's initial point - GET TESTED - or seen by a pulmonologist at the EARLIEST sign of trouble. There are new treatments and even surgeries that can improve quality of life, but if the disease progresses too far, or age and other complications set in, it can get late early.

If you have a loved one in this situation, do what you can to get them to a doctor. They're going to fight it because the first thing the doctor will say is "quit smoking". But it's crucial to treat early, and just as important, to quit smoking to limit further damage and allow the lungs some opportunity to heal.

 

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  posted on 6/9/2009 at 11:13 AM
I'll chime in here as a Respiratory Therapist for the last 15 years. I can't second enough what others have already said about the idiocy of cigarette smoking. I don't mean to offend anyone because I'm sure there are many cigarette smokers here; actually, after seeing so much suffering and so many slow, agonizing deaths, I sympathize with anyone who suffers from this horrible addiction. Unfortunately, after so many years of 2 or 3 packs a day, the damage is irreversible. You can take all the nebulizer treatments and inhalers and steroids, and they help, but someone with severe COPD will be dependent on those for the rest of their life and never be cured of it. In severe cases, chronic oral steroid use for COPD causes skin breakdown and hematomas.

I'm a marijuana smoker myself and like most marijuana smokers I think it's laughable that these lethal cancer sticks are legal and marijuana is not. I know the anti-marijuana camp is going to chime in here and point to studies which point to lung damage from smoking marijuana. Please remember this: The U.S. government for many years now has either outlawed or suppressed any data which points to lack of harm or even beneficial effects from smoking marijuana. "Beneficial effects"?, you say? Yes, Marijuana Policy Project (www.mpp.org) published an article in their quarterly journal last year which showed data from way back in the 70's indicated that THC halts the growth of cancer cells. These studies have been outlawed in the U.S. since the Nixon administration, and the research therefore is going on in France.

Data this, data that, you can point to as many pro or con marijuana studies as you want.
I point to this undeniable fact: Marijuana use has been popular in this country since the sixties, over 40 years. In 15 years as a Respiratory Therapist I've seen countless cases of agonizing slow death and suffering due to cigarette smoking. I have NEVER yet seen a case of slow death and suffering attributed to marijuana smoking. If marijuana smoke is as lethal as some claim, don't you think that in 15 years I'd be seeing that at least occasionally?

 

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  posted on 6/9/2009 at 11:32 AM
And then, as I said, there is the fact that I got COPD from my psoriatic arthritis invading my lungs. Go figure. A good way to at least slow down the psoriatic arthritis is to use Remicade treatment. It is, however, very expensive. About $14,000 a year. I have medicare that covers 80% of the cost of the medicine. A charitable org. covers the rest. I still have to pay around $650 every 5 weeks to my Specialist for the treatment. So, in addition to cigarettes, there are other ways to get it.

BTW, the same doctor that said to my family that they better get to the hospital to see me before I die came to see one more time before I left the hospital. He point blank said I should have not made it. The arthritis had done too much damage. So I asked him point blank, how much time do I have. I was 51 at the time. He said I should last until 60. To me that is a ridiculous statement. How can someone predict the future 9 years in advance?

[Edited on 6/9/2009 by Jhawker]

 

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I saw a shooting star tonight, and I thought of you.

 

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  posted on 6/9/2009 at 11:55 AM
I quit smoking cigarettes Dec 5th 08. When I found out I was diabetic I quit. I guess it scared me into quitting. I have not even wanted a cigarette. I did smoke a couple of those backwoods cigars, which is still smoking but not inhaling. I feel so much better too. I also saw my Father suffer in the hospital with congested heart failure many times, pnuemonia set in the last time and he passed away. That vision of him grasping for air was to much. He had quit smoking and drinking 20 years before he died. I wish I had never started back smoking about 8 years ago. I knew better. You got to get your mind right, then you can quit. I guess it took a few health issues and my father passing to wait me up. No more smokes for me!!!!

 

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  posted on 6/9/2009 at 12:23 PM
quote:
And then, as I said, there is the fact that I got COPD from my psoriatic arthritis invading my lungs. Go figure. A good way to at least slow down the psoriatic arthritis is to use Remicade treatment. It is, however, very expensive. About $14,000 a year. I have medicare that covers 80% of the cost of the medicine. A charitable org. covers the rest. I still have to pay around $650 every 5 weeks to my Specialist for the treatment. So, in addition to cigarettes, there are other ways to get it.

BTW, the same doctor that said to my family that they better get to the hospital to see me before I die came to see one more time before I left the hospital. He point blank said I should have not made it. The arthritis had done too much damage. So I asked him point blank, how much time do I have. I was 51 at the time. He said I should last until 60. To me that is a ridiculous statement. How can someone predict the future 9 years in advance?

[Edited on 6/9/2009 by Jhawker]


When my mom went into the hospital for the six year period before she passed, she was in a coma and the doctors said she would have a 50/50 chance of making it. (Don't ask how she came to be comatose, long story there too). When she awoke, they said she would be respirator dependent the rest of her life, and that the average life expectancy for a person in her situation was 6 months. She wound up living another 6 years.

Never, ever give up hope.

 

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Peach Master



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  posted on 6/9/2009 at 12:38 PM
quote:
If you haven't heard of them, you need to check them out. National Jewish Center for Immunology and Respiratory Medicine in Denver, Colorado. I think they also have a center in Boulder as well.

http://www.nationaljewish.org/research/index.aspx

http://www.nationaljewish.org/research/areas/results/copd.aspx


Here's a journal article that explains one of the mechanisms that cause the airways to hyper-respond. They do all kinds of research out there related to allergy, immunology and asthma. It is THE place where not only do they know what is going on, they know what to do about it. Early on in the 1980's there were people with severe allergies that went into severe asthma, they filtered out some of the substances in the blood that are formed from the combination of the allergic response and then put the blood back in the people. People got well. Allergies are basically a defect (hyper-response) from one of your antibodies (immunoglobulins), IgE. (you have IgG, IgE, IgA, IgD, IgM) and a bunch of other stuff.

http://www.jimmunol.org/cgi/content/full/176/5/3157

Doctors everywhere do NOT all know the same things. Anyone with serious lung problems needs at least a consult with someone out there. Telling anyone or their family that you will probably die means the people you saw have no other answers. Do NOT accept their lack of knowledge. I could be on my soap box against medical america even longer than my soap box about the failures in US Foreign Policy! Please get out to National Jewish where they WILL help you.



Gina, while I appreciate your info, I did not find much about psoriatic arthritis causing COPD.

 

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Long live the King of Cool, Gregg Allman



There is no better feeling than a Hammond in front of you and a Leslie behind you.



I saw a shooting star tonight, and I thought of you.

 

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  posted on 6/9/2009 at 12:41 PM
Sound advice Gregallmanfan. Never give up hope. I did see on the sites that Gina referenced the fact that people with rheumatoid arthritis should try to smile every day. Look for ways to enjoy life like listening to and playing music. I think we all do that.

But you know what Gina, if I could make it out there, I think I would. I have a friend who has been trying to get me to a teaching hospital or into clinical trials for a long time. Who knows, maybe I will go out there. Thanks

[Edited on 6/9/2009 by Jhawker]

 

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Long live the King of Cool, Gregg Allman



There is no better feeling than a Hammond in front of you and a Leslie behind you.



I saw a shooting star tonight, and I thought of you.

 

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  posted on 6/9/2009 at 02:13 PM
quote:
Sound advice Gregallmanfan. Never give up hope. I did see on the sites that Gina referenced the fact that people with rheumatoid arthritis should try to smile every day. Look for ways to enjoy life like listening to and playing music. I think we all do that.

But you know what Gina, if I could make it out there, I think I would. I have a friend who has been trying to get me to a teaching hospital or into clinical trials for a long time. Who knows, maybe I will go out there. Thanks

[Edited on 6/9/2009 by Jhawker]

______________________________________________________________________
If you want to try them, you'll have a place to stay here in Denver. National Jewish is the most renowned Respiratory Center in the country, but the ironic thing is it was established here in Denver because originally the air here was both very dry and low in allergens, but now that Denver has grown with lawns, trees etc. it is no longer allergen free.
So, call and see if you can get into any trials.

 

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  posted on 6/9/2009 at 02:51 PM
I started smoking cigarettes at age 11, and weed at age 14. I quit cigs 25 years ago and rarely smoke weed these days, and when I do, I can't physically take more than 2 or 3 tokes because it kills my pipes. Even though I have been tobacco free for over 25 years, I can't help but feel that I may have done permanent damage to my respiratory system because I smoked during my formative years. Three weeks before my 19th birthday, I had a spontaneous pneumo thorax and would up having surgery to fix the hole in my lung. Ever since then, I feel short winded. My dad quit after 45 years of a three pack a day habit and I think he quit just in time. My step-mother quit in the last year or two but I think she may have early stages of emphysema. They've never mention that or COPD, but I doubt they would. They keep quiet about their health issues. I guess they feel like they don't want to burden us with them. But at 76 and 72, I DO worry about them.

 

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  posted on 6/9/2009 at 04:09 PM
quote:
I'll chime in here as a Respiratory Therapist for the last 15 years. I can't second enough what others have already said about the idiocy of cigarette smoking. I don't mean to offend anyone because I'm sure there are many cigarette smokers here; actually, after seeing so much suffering and so many slow, agonizing deaths, I sympathize with anyone who suffers from this horrible addiction. Unfortunately, after so many years of 2 or 3 packs a day, the damage is irreversible. You can take all the nebulizer treatments and inhalers and steroids, and they help, but someone with severe COPD will be dependent on those for the rest of their life and never be cured of it. In severe cases, chronic oral steroid use for COPD causes skin breakdown and hematomas.

I'm a marijuana smoker myself and like most marijuana smokers I think it's laughable that these lethal cancer sticks are legal and marijuana is not. I know the anti-marijuana camp is going to chime in here and point to studies which point to lung damage from smoking marijuana. Please remember this: The U.S. government for many years now has either outlawed or suppressed any data which points to lack of harm or even beneficial effects from smoking marijuana. "Beneficial effects"?, you say? Yes, Marijuana Policy Project (www.mpp.org) published an article in their quarterly journal last year which showed data from way back in the 70's indicated that THC halts the growth of cancer cells. These studies have been outlawed in the U.S. since the Nixon administration, and the research therefore is going on in France.

Data this, data that, you can point to as many pro or con marijuana studies as you want.
I point to this undeniable fact: Marijuana use has been popular in this country since the sixties, over 40 years. In 15 years as a Respiratory Therapist I've seen countless cases of agonizing slow death and suffering due to cigarette smoking. I have NEVER yet seen a case of slow death and suffering attributed to marijuana smoking. If marijuana smoke is as lethal as some claim, don't you think that in 15 years I'd be seeing that at least occasionally?


A Dr. once told me that marijuana has tars in it when smoked, so from a lung standpoint, it is not good for you.

 

____________________
"Mankind is a single nation" "Allah did not make you a single people so he could try you in what he gave you, to him you will all return, he will inform you where you differed". Quran Chapter 2 Sura 213

 

Zen Peach



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  posted on 6/9/2009 at 04:24 PM
quote:
And then, as I said, there is the fact that I got COPD from my psoriatic arthritis invading my lungs. Go figure. A good way to at least slow down the psoriatic arthritis is to use Remicade treatment. It is, however, very expensive. About $14,000 a year. I have medicare that covers 80% of the cost of the medicine. A charitable org. covers the rest. I still have to pay around $650 every 5 weeks to my Specialist for the treatment. So, in addition to cigarettes, there are other ways to get it.

BTW, the same doctor that said to my family that they better get to the hospital to see me before I die came to see one more time before I left the hospital. He point blank said I should have not made it. The arthritis had done too much damage. So I asked him point blank, how much time do I have. I was 51 at the time. He said I should last until 60. To me that is a ridiculous statement. How can someone predict the future 9 years in advance?

[Edited on 6/9/2009 by Jhawker]


It is a guestimate which is all medicine can do. Arthritis is not just about stiffness or inflammation in the joints. It is an autoimmune disease where the body attacks it's own cells. There are drugs and treatments that help the symptoms and there are foods such as cherries, peanut oil, cod liver oil, calcium, alfalfa and lifestyle changes that can help, but the underlying disease is immune system based.

The Dr.'s know there are different types, and in ankylosing spondylitis and spondyloarthropathies they know there is a specific gene involved HLA-B27. The drug I like (I have osteoarthritis) is Etodolac (brand name Lodine) which helps with inflammation and does not cause gastrointestinal problems. (no it does not make you high). There has been research that aloe vera, also Cetyl Myristoleate (which is an ester of a fatty acid- building blocks of fats) has been researched by Harry W. Diehl. It is a naturally occurring substance so of course the pharmaceutical companies have no interest in promoting anything they cannot patent.

 

____________________
"Mankind is a single nation" "Allah did not make you a single people so he could try you in what he gave you, to him you will all return, he will inform you where you differed". Quran Chapter 2 Sura 213

 

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  posted on 6/9/2009 at 04:29 PM
quote:
quote:
My dad died of this and my mother is dying of it as we speak.....Both were long time smokers


So sad to hear this Ron....


Well my dad lived until he was 81 and passed in 2003 and my mom will be 87 in July so they both had long lives. I hope to make to 80.....But my dad was on oxygen for about 10 years before he passed. It was hard as was mentioned before because it's like a very slow suffication. My mom moved to Reno to be close to my sister after he passed so the thin air up there, 5500 ft, didn't help with her condition. She's been on oxygen for about 3 years now 24/7. She lost her drivers license about a year ago. That was the hardest thing for her because she lost her abilty to feel in control of her own life...I never smoked cigarettes but I'm sure the years of smoking weed and being around them as a kid and them smoking in the house and car I'm sure it will be my demise too

 

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Zen Peach



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  posted on 6/9/2009 at 04:48 PM
Your lungs have the capacity to regenerate goldtop once you stop offending them with smoke. It takes years but they do try to repair themselves. It is never too late to change your health. Just try to do the best you can, when you know something is effecting it negatively, change it, even if it is gradually.

 

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  posted on 6/9/2009 at 06:23 PM
My 48 year old sister was just diagnosed with COPD, and she won't quit smoking.
 
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