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Author: Subject: HAPPY BIRTHDAY TO MY POOH-BEAR!!

Zen Peach





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  posted on 2/26/2007 at 11:34 AM
Gotta brag here, folks! Happy 4th birthday Miss Jolie Haston!!



When Jolie was 4 months old she was diagnosed with Neurofibromatosis type 1. Her father also has the genetic disorder. When she was 6 months old, she began having seizures. After three trips to her pediatrician we finally convinced him that something was wrong. He diagnosed her as having infantile spasms, a form of epilepsy, and she was immediately placed in the hospital. Her pediatrician teamed up with a neurologist. They placed her on medications to try to control the seizures, to no avail. We were told that she may be mentally retarded or that she may not make it at all. They decided they had done all they could. We were told that she should be taken to Texas Tech University Medical Center. Lubbock is 115 miles away from where we live. We quickly gave our okay, and she was airlifted to the Pediatric CCU at UMC at one in the morning. The people there were absolutely wonderful to us. I didn't know what to expect. We had no place to stay and very little money with us. I had just came out of the hospital myself after having gall bladder surgery. They gave us a room on the pediatric unit until a room at the Ronald McDonald House became available. The neurologist at Texas Tech, who is our hero, placed Jolie on Depakote. This seemed to keep the seizures at bay. After a week she was released; however, the seizures returned after we came home. On her follow up visit with the neurologist she was placed back in the hospital. Her neurologist put her on a steroid that finally put the seizures under control. Problem was that the steroid was administered by shot. Guess who had to learn how to do that??? Me! The nursing staff were wonderful and very patient while I learned how to give a shot. After a week, Jolie was released, and for the next few months I gave her an injection of the steroid twice a day. Her neurologist was pleased with her progress and eventually took her off the shot, and left her on the Depakote. When he was called to Iraq, her pediatrician assessed her progress. After a couple of years, I asked if she could possibly be taken off of the Depakote. Her pediatrician agreed, and she was gradually taken off the medicine. Her neurologist has returned from Iraq. We took Jolie to see him on February 19th and he is very pleased. She is scheduled to have follow up tests run on March 20. I'm proud to say that she hasn't had a seizure since October 2003. She is happy and healthy, and that's all we could ever hope for!












JaBuMa ain't got nothin' on us!!

So most of you are wonderin': What is Neurofibromatosis?
The neurofibromatoses are genetic disorders of the nervous system that primarily affect the development and growth of neural (nerve) cell tissues. These disorders cause tumors to grow on nerves and produce other abnormalities such as skin changes and bone deformities. Although many affected persons inherit the disorder, between 30 and 50 percent of new cases arise spontaneously through mutation (change) in an individual's genes. Once this change has taken place, the mutant gene can be passed on to succeeding generations. Scientists have classified the disorders as neurofibromatosis type 1 (NF1) and neurofibromatosis type 2 (NF2). NF1 is the more common type of the neurofibromatoses. In diagnosing NF1, a physician looks for changes in skin appearance, tumors, or bone abnormalities, and/or a parent, sibling, or child with NF1. Symptoms of NF1, particularly those on the skin, are often evident at birth or during infancy and almost always by the time a child is about 10 years old. NF2 is less common. NF2 is characterized by bilateral (occurring on both sides of the body) tumors on the eighth cranial nerve. The tumors cause pressure damage to neighboring nerves. To determine whether an individual has NF2, a physician looks for bilateral eighth nerve tumors and similar signs and symptoms in a parent, sibling, or child. Affected individuals may notice hearing loss as early as the teen years. Other early symptoms may include tinnitus (ringing noise in the ear) and poor balance. Headache, facial pain, or facial numbness, caused by pressure from the tumors, may also occur.

http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm

 

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Zen Peach



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  posted on 2/26/2007 at 11:38 AM
Happy Birthday Miss Jolie!!!!!

 

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Zen Peach



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  posted on 2/26/2007 at 11:39 AM
well that is wonderful news!

Happy Birthday!

 

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Zen Peach



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  posted on 2/26/2007 at 11:40 AM
HAPPY BIRTHDAY JOLIE!!!

Mitzi, she's adorable. I know you're proud!

 

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  posted on 2/26/2007 at 11:41 AM
Feliz Cumpleaņos Jolie!!!

She's a beautiful girl Mitzi, congratulations...

 

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  posted on 2/26/2007 at 11:44 AM
HAPPY BIRTHDAY JOLIE!!

I See it hasn't affected her spirit, or beautiful smile.
She's adorable, and looks like a happy child.
That's a tribute to you Mitzi.

 

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Zen Peach



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  posted on 2/26/2007 at 11:56 AM
Happy Birthday you little sweety!! So cute, mom and dad included!

 

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  posted on 2/26/2007 at 12:00 PM

HAPPY BIRTHDAY JOLIE !!!


She's a real cutie, I can see both you and Little Daddy in her Mitzi

It's no wonder that we got along so well, today is also my oldest son's birthday

Sean


He's 22 today, time flies, I remember when he was 4
He's learning Blacksmithing and works the Renaissance Festivals
Working on his degree in Computer Graphic Design

Another proud Momma here bragging

 

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Zen Peach



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  posted on 2/26/2007 at 12:03 PM
What a cutie!

Happy Birthday, Jolie

 

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  posted on 2/26/2007 at 12:16 PM
happy birthday to a good looking kid!
 

Zen Peach



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  posted on 2/26/2007 at 01:13 PM
Happy Birthday to Ayla's Sean too!

 

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Zen Peach



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  posted on 2/26/2007 at 01:22 PM
Happy Birthday!

Got me grinning....

 
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  posted on 2/26/2007 at 01:24 PM
happy birthday

 

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True Peach



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  posted on 2/26/2007 at 01:40 PM
quote:
HAPPY BIRTHDAY JOLIE!!

I See it hasn't affected her spirit, or beautiful smile.
She's adorable, and looks like a happy child.
That's a tribute to you Mitzi.



Well said & fully echoed
You must be so proud Mitz -- if there's a Mom of the Year award, Mitzi Haston is the winner.
Happy Birthday Sean too!


[Edited on 2/26/2007 by Stephen]

 

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Universal Peach



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  posted on 2/26/2007 at 02:11 PM
Happy Birthday cutie pie!

Brag on Momma.....

 

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Zen Peach



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  posted on 2/26/2007 at 02:17 PM
Mitzi, your Jolie is adorable!!! Thanks for sharing her (and your) story and these pics - Ms. Jolie created big smiles for me today ... she looks so joyful in these pictures!

To Jolie - Happy Birthday ... have fun being 4 and may you stay forever young!

Ayla ... Happy 22nd Birthday to Sean! He's a handsome guy (there's just something about Renaissance Blacksmithers...LOL) That is a very cool gig he's got going with the festivals!

 

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Zen Peach



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  posted on 2/26/2007 at 02:44 PM
Happy birthday, Sean!!

Funny thing is that it's also my oldest brother's birthday! LOL!

 

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Universal Peach



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  posted on 2/26/2007 at 03:27 PM
HAPPY BIRTHDAY JOLIE!! You have a wonderful set of parents there young lady and beautiful people as well!!!

 

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Universal Peach



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  posted on 2/26/2007 at 03:28 PM
Happy Birthday Sean!! You have a wonderful momma!!

 

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Extreme Peach



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  posted on 2/26/2007 at 04:07 PM
HAPPY BIRTHDAY JOLIE!!!!!!!!!

HAPPY BIRTHDAY SEAN!!!!!!!!

 

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  posted on 2/26/2007 at 05:13 PM
happy birthday miss jolie haston!! i hope you got everthang you wanted & more.......
you is did a damn good job there miss mitzi

 

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Zen Peach



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  posted on 2/26/2007 at 06:12 PM
happy birthday

 

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  posted on 2/26/2007 at 06:45 PM
Mitzi,

She is a cutie...

Happy Happy Birthday

 

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Zen Peach



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  posted on 2/26/2007 at 07:29 PM
What a lovely happy story to start the new week ... long may the happiness continue ... very many happy returns to Jolie ... a beautiful little girl

 

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Zen Peach



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  posted on 2/26/2007 at 09:42 PM
Thank y'all so much!

 

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